Clinical Trial continues....

I had my second infusion on Tuesday, August 26th. It was uneventful, for which I am grateful. I saw the RNP who works with Dr. Michaelson first, and she was quite shocked at my complete lack of any side effects from the first week of medications...apparently, because I've started when I'm still feeling well, it makes a big difference. Some people start the trial when they are really sick and this just makes it worse. Anyway, it was a long day of waiting around. Really no after effects, other than I couldn't sleep that night. They gave me anti-nausea medication along with steroids to help it work better, and the steroids really must have hyped me up. Yikes....it was a long night. Today is Thursday, and while I slept great last night, my energy level is pretty low today....I think I need some protein....

Peggy and I played 4 games of Scrabble--we were at MGH for so long. She has a great little travel Scrabble...you can close it up and the letters stay put, move on to another appointment and start up where you left off...it was a great way to pass the time. I shouldn't complain about the waiting time....as I looked around the room on the 8th floor where the infusions are done, there were so many very sick people who were suffering, and on their way in to be given meds that were going to make them suffer even more, at least in the short term.

I am truly grateful that I am feeling so well. My sciatic nerve problem seems to be resolved, the weird pain in my side is gone, I am not having any side effects from the meds, my vegan eating plan is going well and I feel great. I keep telling them at MGH that they must have messed up on my diagnosis....I only wish...