Well, almost another week has gone by--the radiation treatments continue, I have 5 more to go. They are totally sapping my energy...what little I have left. Last night, I couldn't sleep, who knows why....but it was a long night. Peg and I went to MGH for the treatment and by the time I got home, I was just about comatose...just really done in, partially from not sleeping and also from the radiation. The sofa, my new BF, is where I spent the afternoon, snoozing and napping, actually a very pleasant way to spend the time. These days, it is those things that bring comfort and joy---getting real rest, eating something that actually tastes pretty good, feeling halfway decent for a good part of the time, and spending lots of times with family and friends--I've had a houseful and it has been great...better than great.
Keith left on Sunday, after being here for 11 days...I don't know what I'd have done without him...so unobtrusively helpful, wise, caring and loving. We got to have some serious talks, explored issues that must be spoken of, was able to come to some conclusions that needed to be reached, he played his guitar and sang to me, we laughed and we cried. It was the best of times...
It's hard to believe that Christmas is 10 days away. Everyone scurrying around trying to get their "thing" done, and in the midst of that, coming by to see me, calling, emailing, blog commenting, dropping by "goodies"... the timing of this little setback was not exactly timely. Peggy came from AZ and will miss Christmas with her family out there...The job search for Heather continues...just trying to get her signed up for services is challenging. Hopefully, by the end of this week, it will be totally underway. Heather is enjoying her time at home with Sydney (and Ralph of course:), but I think she will be happy with more to do.
All right, I'm off to bed, for either another wrestling match with the bedclothes or some needed sleep, hopefully the latter. I sleep with the oxygen, but my breathing is really quite a bit better. I'm on a steroid now, which also may interfere with good sleep. It's a crapshoot--never seem to know what kind of night it'll be, but the following day is totally dependent on it---that's how it seems anyway. The nodes that they are treating in my neck are definitely smaller today---I thought so yesterday also, but today--definite. So, a glimmer of hope that this thing is shrinking and getting ready for the next systemic chemo treatment, which will start after the first of the year....that's the plan at the moment anyway. Well, there seem to be no absolutely definitive plan at the moment...we're fighting this thing with the arsenal that is currently available and hoping and praying that one will work. For now, it is how it has to be....I have my days when I think in shorter terms than on other days, but for the most part, I'm still in there for the long-term fight...and am looking for more weapons to fight with.
Monday, December 15, 2008
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7 comments:
Hi Bev,
I just read your whole blog from the beginning. I am sorry to hear you are not feeling so great. I hope that you are able to get some good rest tonight, and feel better in the morning. You are the most optimistic person I know. The prayers of all of your EC buddies are with you. Thinking of you.. Lisa Clark (Skelton fam, tent #11) :O) Sleep tight.
Thanks for taking the time and energy to Blog. I check every day for an update. Keep up the fight. We love you-
Bev, I just want to let you know that my wife (Courtney) and two girls (Brooke & Lauren) are praying for you!
Hey, Bev,
I hate that you are going through all this trouble, especially at this time of year, but please know that you are loved and thought of often with caring and best wishes.
Take care and rest when you can.
Much Love,
Sharon
love you. Getting back on line to check if you wrote. Glad for the update. I just read the blog to my mom. She prays for you every day!
Keep up the Strong work!
Much love - call for anything!
shell
Bev, I am praying for you ! you are so Amazing !
Love, Joanne
Beverly,
Not a blogger, but sometimes words are a good thing. We keep abreast of your progress though all the e-mails and talking with Mal M. Sounds like you have a wonderful and caring family out there. Guess you did a lot of good things over the years. That's the good training your Mom and Dad gave you. You're in our prayers and we are looking forward to seeing some good news for a change. Be strong.
Love, Linda and Peter B
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